In the 2016 we published paper in Neurology about the cause of cerebral palsy (CP). We found a significant genetic component in many children. Only later it occurred to me that there is a problem. We actually just missed the relevant audience- the parents! Not all parents with CP read Neurology (journal). I mean it could be that they do, but they may have missed our paper. Nonetheless they continue to expand the family while their child with CP may have a genetic cause that could be prevented in their next pregnancies. The question was how to provide this information to the relevant audience in their language and in a practical manner. I thought that an online questionnaire maybe a way to provide this information in an accessible manner. So I used Google forms to create an online questionnaire looking at the cause of cerebral palsy. This is a short questionnaire based on neurological concepts written in lay language. It is filled online anonymously without any personal information by a parent or physician and appears in 4 languages English,Arabic, Russian and Hebrew (other translations are welcome).
Will this work? I don’t know.. Let’s give it a try. It’s success very much depends on you. Please spread the word in social media so it would reach the right audience.